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Welcome to our blog page. This is where you will find our recent news and our future plans. If you have anything to share then please email it so we can post your news too!

Zoom, social distance meet and more!

posted 20 Aug 2020, 02:26 by Gemma Richards   [ updated 20 Aug 2020, 02:26 ]

Good morning.

I hope you are all keeping as well as possible. Alot of us struggled last week with the intense heat so hope you are feeling better now it has cooled. I need a really good storm to clear the air as I am still feeling very foggy and achey, which I know some of you will agree with me as well.  This is probably a bit of a long email so you may need to make a cuppa of your favourite drink, get your diary out and take you time. Below is some of our upcoming events and ideas. Please read and feel free to ask any questions. 


1. Zoom meetings
  - these are fortnightly with our previous one being last Tuesday 18th August. Unfortunately, I cannot do the next one scheduled in  2 weeks as I have a PD day at work (after 5 months). After discussion our next Zoom meeting will now take place 3 weeks from now and will be on Tuesday 8th September at 2pm. I will send the link to join the meeting closer to the date. The next one should follow on the 22nd September. However, the following one may need to be rescheduled as it falls on the 6th October which is my daughter Rebeccas 3rd Birthday so I will be unavailable. I will discuss this with fellow zoomers at our next 2 meetings and will notify you of the October zoom meetings dates once decided. 
In summary our next 2 Zoom meetings are Tuesday 8th September and Tuesday 22nd September at 2pm. 

Struggling to access zoom but wish to join - read the next paragraph. 
If you are struggling to access zoom but wish to join us, please make contact and we can arrange a phone call to see if I can help access it, we can then practice and see how we get on. There is a common misconception you need to register and log in, however you can access it from your internet browser. The quality is not as good but you can still join the meetings. Please let me know. 

2. Social distance meet in the park 
At the moment our meetings at the hall cannot take place in line with current guidelines but a few of you have mentioned meeting at a park, to socially distance, bringing your own food and drink. I would like to do this. I am thinking of accessible parks for parking and accessibility and am thinking of using Chantry Park or Bourne Park. Looking at the weather and availability I can do Wednesday 26th August at 1pm. If anyone can recommend a better place and I can confirm location nearer the time. But please save the dates. 
In summary Social distance park meetings at 1pm on Wednesday 26th August  (Location to be confirmed). 

3. Blog post by members each month.  
Recently, I have been reading posts on different websites where their members have blogged to share their journey of life, becoming ill and how they have been treated since becoming ill. I find these really interesting and have shared some on the Facebook and Twitter groups. I would like to do this for our group where our members and their families can share their experience with each other so each month i would like to receive a post from a member to share (you can remain anonymous if you prefer) and help raise awareness as well. I think this will help others realise that we are all going through our own journey and have struggles and also help everyone get to know each other. I hope this makes sense I am struggling to word it properly. I wish to post this on the 1st of each month. I will be writing the first one but if you are happy to write a blog for me to share please let me know and I will let you know your month. 

4. Videos of us doing things we love
Quite a while ago I asked you to end in pictures of you doing the things you love to make a video like our wildlife one, I have not quite finished this so this is my last push, if any of you can send in a picture for me to share of you doing what you love, a craft etc.... please send it to me via email by the end of this week, I aim to put it together Sunday night or Monday. 

Phew,  I think that is it for now. Take care and please remember if you need a chat give me a call 07791383143. 

Gemma x

Zoom meetings

posted 29 Jun 2020, 23:58 by Gemma Richards

Hi all, 

I am trying to be more organised so thought I would email the next 3 zoom dates, I will send out the link for the meeting of course the day before the meeting. The upcoming dates for the next 3 zoom meetings are below. They will start at 2pm and usually last about 90 minutes but of course if you want to pop in for a shorter time you are more than welcome. Of course, these are not as good as our in person meetings but they are the next best thing. 

Dates: 
Tuesday 7th July
Tuesday 21st July 
Tuesday 4th August

Always here if you need a chat. 

G X 

Our video and next challenge

posted 27 Jun 2020, 06:04 by Gemma Richards

A little while ago I set the challenge of sending in positive photos for us to make a video and i have finally made the video the link of which is attached below in our files or the link is https://animoto.com/play/zNrPzxAKFRTe7QvTJd0Jsw. This is my first attempt so be gentle but I hope you like it and it gives you some joy, I had a lot of fun making it and seeing all your photos. 

Our next challenge has been set:
Please send in a photo or some photos of you doing something you love doing, such as crafts or reading, walking etc...if you do not wish to be in the photo that is fine but would love to see your faces or you hard at work. Can I have all photos by next Saturday 4th July please .Love and hugs Gemma x

Still here!

posted 18 Jun 2020, 12:38 by Gemma Richards

I cannot believe we are in Mid June and still not able to arrange a meeting to see our lovely group. I miss you all and the support, friendship and love, you have shown me over the years. 

Alas, we are still here though even if we cannot meet in person. We are hosting fortnightly Zoom meetings on a Tuesday afternoon from 2pm, which has been a great success and we have had some laughs. Our Facebook group is active and we can still provide support over the phone. 

Until we meet again, always here and wishing you well. 

Gemma x

Covid 19 Information from ME Association

posted 3 Apr 2020, 13:01 by Gemma Richards

Hi all, 

A few people have been emailing me questioning if they should have a letter to shelter for 12 weeks. According to Me association anyone with a CFS condition is deemed in the vulnerable group so should shelter for 12 weeks. Link is here. https://www.meassociation.org.uk/…/me-association-full-gui…/.

As per normal, even the government are confused by CFS conditions and whether we are vulnerable or not.

Letters from GP are actually issued by government and as yet we have not received one even for Rebecca's asthma. I was informed if i need a letter for my employer to contact GP but if not just follow the shelter guidelines for 12 weeks then review. Hope this helps.


Please take care and see you soon I hope. 

G x

Covid 19 - Meetings cancelled

posted 23 Mar 2020, 07:15 by Gemma Richards

Hi all, 

In this strange times I am really hoping you are all looking after yourself. 

In light of the horrible Covid 19 and the government requirements of social distancing and the closure of gatherings at the church, I am having to make the hard decision to cancel our meetings and any social events for the foreseeable future. 

As an alternative, if you want a telephone call around the time of our monthly meeting, please let me know and I will schedule a call to you. Whilst I hope this is a temporary measure I will keep you posted. 

I am so sorry as I know so many including myself really benefit from these meetings but your safety comes first. 

Take care and keep safe.. 

Lots of love and virtual hugs
Gemma x 

Coffee Morning and Chums

posted 18 Feb 2020, 03:00 by Gemma Richards

Hi all, 

The coffee morning on the calendar is going ahead tomorrow. It will run from 13,30 - 15.30pm at the Community Room at Morrisons, Sproughton Road, Ipswich IP1 5AQ. There will be cake and coffee and of course Rebecca and me. Come along for a chat and a hug as well as good company. Hope to see you there. 

Also over the past 2 days I have been finalising chums details, if you missed the previous email and wish to join then it is never to late. The chums is where you will receive a chum to write to, email or text another member. If interested I will need your address, email, phone number and birthday please. I will then send you your allocated chums details. 

Finally our next meeting is Tuesday 3rd March at St Johns Church Hall, Cauldwell Hall Road, 13.30-15.30pm. 

Kind regards, best wishes and gentle hugs

The CFU Team

Christmas Meeting

posted 14 Dec 2019, 06:41 by Gemma Richards

On Tuesday 3rd December we joined together for our last meeting of 2019. We had a Christmas raffle and buffet and a very relaxed meeting to just chat, take some time out and enjoy one anthers company, plus we sported some lovely festive jumpers and hats as you can see below. 

      



We look forward to our Christmas meal on Tuesday 17th December, just wait for our photos. 

In the meantime, our next meeting is now on Tuesday 4th February 2020, where we hope you can join us to celebrate our amazing 9th Birthday. 

I would love to wish you all a very lovely Merry Christmas and a Happy New year from all of us at CFS Unite. 

x

Chums relaunch

posted 18 Nov 2019, 04:41 by Gemma Richards

After lots of requests, previous success and my own personal wish I am going to relaunch the Chums scheme in January 2020 which is where you can be linked to another member and become pen friends, text buddies or email buddies as a more personal way of providing support.

If you wish to join this scheme and get a chum please email gemma@cfsunite.co.uk with the heading chums and let me know the following:

Name
Address
Contact Number
Email
Birthday date
If you prefer contact via post, email, text or if not bothered reply all. 

Once I have numbers I will pair you up and in the new year will send you out a chum to pair up with to keep that communication going.  Please be aware if you say you prefer post I will only provide your address, or if you reply email only your email address etc....

Gemma x

Upcoming and 2020

posted 16 Nov 2019, 03:51 by Gemma Richards

Good morning, 

I hope you are as well as possible and have avoided the winter bugs better than I have. 

Our last meeting of the year is fast approaching on Tuesday 3rd December at 13.30 till 15.30. Please join us for the festivities as we are hosting a festive raffle and nibbles plus if you can join us wearing your favourite Christmas outfit or jumper that would be great. 

Our Christmas meal is upcoming on Tuesday 17th November at The Mermaid from 12.30. Currently I have 15 of us booked on with 2 people joining us at the end for a rink. If you fancy joining us please let me know by the end of this weekend and the deposit and food choice must be with me by the end of Monday. 

Finally, the dates for next years meetings, a coffee morning, BBQ and Christmas meal 2020 is up on the website so get these saved in the diary. Please check this page from time to time as I will add dates throughout the year. The link is http://www.cfsunite.co.uk/meetings/upcoming-events 
 

Wishing you all the best. 
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