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Information and upcoming

posted 14 Jun 2019, 05:04 by Gemma Richards   [ updated 14 Jun 2019, 05:05 ]

Good afternoon dear CFUniters, 

I hope this week finds you well as well as can be expected. After some weeks of not feeling my old self today appears to be a brighter day so fingers crossed I have turned a corner. 

A few things to share with you.

1. Upcoming - as those of you who were at the meeting I was unable to share upcoming dates due to an immense brain fog well fear not here it is. 

Tuesday 2nd July is our next meeting at St John's Church Hall. 13.30 till 15.30. Refreshments available.  

Tuesday 23rd July - is our beach hut day. Join us on the waterfront of Felixstowe for a day by the sea with our very own beach hut to use with mugs and tea making facilities.. I have scheduled times in from 10.30 till 3.30 ad to give you an idea it is very close to the pier so not too far to walk to the toilets or if youfancy some fish and chips/donuts. I will supply tea/coffee/ milk etc.... but please bring snacks if you are hungry. 

Sunday 25th August - I have scheduled in  our almost annual CFU BBQ at my house. from noon till 16/17ish. We will supply burgers, sausages and bread including veggie options, you bring the rest. There are some chairs but will possibly request more. Please be aware I have a dog who is very friendly. You are more than welcome to bring your families and any dog friendly pets if you wish. 

Also in our September meeting Lisa has kindly organised a guest speaker called Natalie who is joining us as she is a hypnotherapist and mindset coach. 

Other things to share: 

Tomorrow Saturday 15th June - I am hosting a dementia cupcake day at Galaxsea Divers from 11am till 4pm to raise money for the Alzheimer Association. If you are free and fancy some cake come along and say hi. I am currently baking some carrot cake and g/free dairy free banana muffins. Plus there will be lots more. 

Saturday 15th and 22nd June
 - Lisa's group the Springfield follies have their show called Thank you for the music (information attached) , please if you can contact Lisa and book your tickets, It is always a good show. 

Finally, I am interested in hearing from people for 2 things, 

1. Do you wear mouth guard at night, if so would you be able to tell me what for, what kind and any benefits or problems you have found with them?  I have been talking to people about my constant clenching which is causing headaches as well as jaw aches. I have recently purchased a cheap mouth guard to try but would love to hear feedback and recommendations. 

2. Are you a pacer to conserve energy? If so can you share an example of your day and whether you find it beneficial or not. I have a member really struggling to pace but as a result she is boom or busting daily. Any advice given would really be appreciated.

All information given will be anonymous and I hope to share more information soon. 

That is it for now. Hope to hear or see you soon. 

G x

A restful meeting

posted 5 Jun 2019, 07:44 by Gemma Richards

Yesterday we were joined by @lindseyjanemarsh ( who talked to us about her journey with ME, and yoga. A massive thank you for sharing her story and providing a short session on yoga and breathing techniques. Lindsey has kindly agreed to send us some information which i will share I once receive it.

Finally thanks to those who attended who persevered with my immense brain fog (thanks Lisa for taking over) and for putting up with Rebecca running about. I did have some things to share but will put it on the blog and share when my brain is functioning. G x


posted 6 Mar 2019, 05:58 by Gemma Richards

Unfortunately yesterday the 5th March we had to cancel our monthly meeting. This is not something we decide lightly. I did try to get hold of everyone I can by posting on Facebook, Twitter, text and I sent 2 emails, unfortunately I cannot make individual phonecalls. On Monday night it came to my attention that my first email had not been received by some people so I sent it out using my personal CFS Unite email instead of the info one and it has still not worked. I am looking into this at the moment and if anyone has any ideas please let me know.

If you turned up on Tuesday, please accept my sincere apologies that I endeavoured to get into contact with everyone as soon as it became apparent it was going to be cancelled. All I can now ask is please check the website the morning of our meeting date and if there are any changes I will endeavour to have it on the homepage of the website by 9am. I hope this is a one off situation but please accept my sincerest apologies.

Gemma x 

Happy New Year

posted 5 Jan 2019, 04:32 by Gemma Richards   [ updated 5 Jan 2019, 04:48 ]

Hello Chronic Fatiguers and firstly wishing you a Happy New Year.

I truly hope 2019 is a good one for you and kind to you. 
Our next meeting is Tuesday 5th February 2019 at St John's Church hall, from 13.30 until 15.30pm We will be celebrating an amazing  8 years of meetings. 8 YEARS - thank you all so much for the amazing 8 years of support and encouragement. To celebrate I hope you can join our meeting where we will have nibbles and cake to celebrate. All dates of our monthly meetings can be found on our upcoming events page on our website. 

I am also thinking of hosting a coffee morning on Tuesday 19th February at my house from 10.30 until midday, so book the date in the diary and join me for a cuppa and cake or biscuits. let me know if you think you would like to join me so I can get in enough biscuits and let you know my address. 

Other plans for 2019 is our quiz in April or may and later in the year as well as a BBQ and maybe more. 

I hope we will see you and support you in 2019. Take care. 

Gemma x

Christmas meal and meeting

posted 17 Nov 2018, 09:45 by Gemma Richards

Good evening all, 

Sorry to mention the C word in November but it is only 2 weeks until December and a few more days after will be our December meeting. Also I urgently need some responses about the Christmas meal which I have only just got round to finalising (apologies but had another rough month with both Rebecca and I ending up in hospital on different occasions- thankfully we are both ok now so nothing to worry about. 

Christmas Meeting Details : 
Our next meeting is Tuesday 4th December, 13.30 till 15.30 at St John's Church Hall. The theme is Christmas with a Christmas outfit competition, a buffet and a raffle to start the celebrations. So dig those jumpers, hats, earrings out and join us for a relaxed social afternoon. 

Christmas Meal:
The date of the Christmas meal is Tuesday 11th December from noon (sorry to those who attend the Fibro group but I could not get the dates changed however please do join us after for a drink). This will be at the Mermaid pub in Ipswich. If you intend to join us please could you confirm by the end of Tuesday night (this Tuesday 20th November) as I need to go in on Wednesday to confirm and please could you take a look at the menu (link below) and send me your menu choices by next Saturday. I really hope you can join us for a lovely meal. I can offer a lift for 2 people. The link for the menu is

Finally for our 2019 meeting dates please visit our upcoming events page 

Recommended book

posted 17 Nov 2018, 08:24 by Gemma Richards

Hi all, I wish to share with you an email from Catherine Saunders who has had a book published called "Understanding Severe ME - Essential Guide for Family & Friends"  in a bid to raise awareness. Please find the email below with a link to the book. I intend to get a copy when I have the funds and will share it with the group. 

Dear Ipswich ME Support Group,

Great to hear there is a support group in Ipswich helping ME patients & their families cope. 

Hopefully, my email will give your members a further source of information and guidance.... a book written by me, a former Severe ME Patient of Professor Findley...the consultant who used to head up the amazing ME Specialist NHS Unit in Essex, sadly now closed.

Long story short, I was very severely affected and am now approx 70% recovered...but as you know, not all severely affected patients are that lucky.

I lost over a decade of my life to this cruel illness and one of the hardest things to cope with - besides the bedpans, bedbaths, spoon feeding, light sensitivity and relentless pain - was how little my Family & Friends knew about the harsh realities of Severe ME.  Like so many other patients, this caused immense stress at a time when my Carer husband and I desperately needed their understanding, support and compassion.

So, one of my goals, when strong enough, was to try and turn my own experience into something positive, something which might help all those thousands of poor families affected by Severe ME following in my wake.  

To this end, I have recently published a book on Amazon:  "Understanding Severe ME - Essential Guide for Family & Friends"

Buy Understanding Severe ME: Essential Guide For Family & Friends by C.H. Saunders (ISBN: 9781973344452) from Amazon's Book Store. Everyday low prices and free delivery on eligible orders.

I lost many years to ME but I am one of the lucky ones.  I had 2 x 6 week admissions to Professor Findley's renowned NHS Severe ME Unit in Essex plus the support of Specialist ME Outreach Nurses in Greater Manchester for over 3 years.  These interventions helped my recovery dramatically but sadly both specialist ME units are no more.  And so, in addition to explaining what the hell is going on in Severe ME, I also detail in my book what I learnt from these specialist ME Services that helped in my own recovery. 

Feedback so far has been extremely positive and the book is being used far more widely than I ever anticipated:

  1. Mild/Moderate ME Patients are asking Family & Friends to read it to explain how severe ME can become if patients are pushed. 
  2. Patients & Carers are giving a copy to their GPs.
  3. Patients & Carers are giving a copy to local ME/CFS Clinics.
  4. Carers of younger Patients are giving a copy to their patients' Schools/Universities.
  5. Severe ME Patients & Carers are giving a copy to Friends & Family.

Feedback like this is wonderful.  This is the ME Book I wish had been around when I was so ill, a book that could have spoken for me when I was too ill to speak for myself. 

Am attaching a digital information leaflet and a copy of a letter from Professor Findley himself about my book, so you and your team can be assured it has the support of one of the most highly respected ME Specialists in the UK.  

And if you would like some printed leaflets for your team and the patients you support, please just drop me a line, very happy to post some out to you for your members.

Really hope you find the book useful, and please, feel free to contact me if you have any questions at all.

Here is a shortened link to Amazon...the book is available as a Paperback and as an E-Book.

Kind regards, 


(C H Saunders - Author)

Meeting tomorrow

posted 5 Nov 2018, 12:40 by Gemma Richards

Good evening,

Just a little reminder that tomorrow is our monthly meeting. We have Ben coming who has worked with One life coming to talk about pacing and exercise. I will also be hopefully sorting out the Christmas meal and need some nominations for Vals flowers of hope.

I will be in touch shortly regarding Xmas meal and other information but just wanted to remind everyone the meeting is tomorrow at St John's Church Hall, 13.30 until 15.30pm.

Kind regards, best wishes and gentle hugs

Gemma and the CFS Unite team x

Email sent today regarding 2019 dates

posted 26 Oct 2018, 02:57 by Gemma Richards

Good morning lovely people, 

How is it nearly November already? I hope you are keeping as well as possible in the warm weather we are still having. 

Just a couple of things. 

We had our quiz last Saturday and it was lovely to see so many members join us for a lovely afternoon. Details of the afternoon and its success can be found on the blog post below. 

Secondly 2019 is nearly here so we are now booking the hall for 2019. The dates are below. I will also be booking two Saturdays for our quizzes and will let you know the dates once confirmed. Our meetings will still be the first Tuesday of the month 13.30 until 15.30 at St John's  Church hall. 

2019 Dates

5th February
5th March
2nd April
7th May
4th June
2nd July
6th August
3rd September
1st October
5th November
3rd December

Please note I have not booked January as this would be the 1st January however, if there is interest I can arrange a coffee morning to catch up with you. 

The remaining dates for this year is Tuesday 6th November and the 4th December. We are also hoping to book a Christmas meal. Will let you know details soon. 

Kind regards, best wishes and gentle hugs


Thank for joining us at our quiz

posted 26 Oct 2018, 02:34 by Gemma Richards   [ updated 26 Oct 2018, 02:44 ]

On Saturday we held one of our quizzes and was delighted to be joined by lots of our members and their family and friends. 

 I am delighted to announce that we made a brilliant £301.56p which goes towards the running of our group.  

A massive thank you goes to Lisa and Mike for the quiz, Cathy and Margaret for being our dolly dealers, to Bryan for his amazing cake and charity in donating it and also to David and his mum for tea making. Thanks to everyone who donated cakes and everyone who attended to make a great afternoon. Looking forward to the next one already.

See below for photos of the lovely afternoon. All photos can be found on our Facebook page. 



Thanks for another successful quiz

posted 26 Oct 2018, 02:28 by Gemma Richards

On Saturday we held one of our quizzes and was delighted to be joined by lots of our members and their family and friends. 

I am delighted to announce that we made a brilliant £301.56p which goes towards the running of our group.  

A massive thank you goes to Lisa and Mike for the quiz, Cathy and Margaret for being our dolly dealers, to Bryan for his amazing cake and charity in donating it and also to David and his mum for tea making. Thanks to everyone who donated cakes and everyone who attended to make a great afternoon. Looking forward to the next one already.

See below for photos of the lovely afternoon. 


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