Blog

Welcome to our blog page. This is where you will find our recent news and our future plans. If you have anything to share then please email it so we can post your news too!

Do you love books?

posted 29 Aug 2018, 05:43 by Gemma Richards

New for 2018 - CFS Unite Book Club

If you love books but have a Chronic Fatigue Condition than we are the group for you! We are a small group of book lovers who want to join a book club but cannot read as fast or as much as other people in normal book clubs. The CFS Unite book club is a book club who has the patience to work through the fatigue of reading and having to read the same page again because of brain fog, allowing you to take your time in reading a book and then discussing it either online or in person. At this time the group is on Facebook but if it becomes popular than we will look into an online forum.  

Click Here to be taken to the Facebook page.  

Contact Gemma for more information.

Lisa's trip to RNLI Aldeburgh

posted 29 Aug 2018, 02:11 by Gemma Richards   [ updated 29 Aug 2018, 02:13 ]

Yesterday our lovely Lisa went to Aldeburgh RNLI to give them the cheque for £230, which we raised at our April quiz in memory of her Brother Phil. Lisa was very lucky to look round the Lifeboat station and meet Steve The Coxwain. Thank you to everyone who donated at our April quiz and for their support and thank you to RNLI Aldeburgh for making Lisa's day so special.

I am sure you can agree Lisa would make an lovely looking RNLI crew woman!

Pictures from her day are below.



Upcoming events and spam mail!

posted 22 Aug 2018, 01:41 by Gemma Richards

Hi all,

We have lots of events coming up and I wish to ask for you to please check out our upcoming events page as you will find not only our meeting dates for the rest of 2018 and soon 2019 but also other events including the upcoming day trip to Felixstowe, and the October CFS Unite quiz. The link is http://www.cfsunite.co.uk/meetings/upcoming-events.
More events are being added soon, hopefully a coffee morning, the date for the Xmas meal and possible an alternative date for the cancelled BBQ so please keep checking back although I will try and keep in touch and inform you as well.

Secondly, apologies that I had to cancel the BBQ, both my daughter and I awoke on the Sunday morning absolutely full of cold and I didn't wish to share the love in the form of germs with you all. I hope to rearrange something soon.

Finally, if you receive emails from us, please could you save the info@cfsunite.co.uk as one of your contacts. Recently when sending emails to some of you, it gets declined as your email thinks it is spam (this is especially the case for BT internet addresses). If you can do this as it is a lot of hassle and time to have to resend the email individually to those that has bounced back. P.s If you have not received any emails from us in the past three months check your spam.

That is it for now. Apologies if I am slacking lately, I am exhausted with having a young baby and my anxiety is playing up so I am having to take things slowly and some days cannot face things. Please be patient and I will get there.

Thanks G x

August Monthly Meeting and BBQ

posted 6 Aug 2018, 13:20 by Gemma Richards   [ updated 6 Aug 2018, 13:27 ]

Good evening,

I hope that you are keeping as well as can be expected and not struggling too much in the heat now that it is back. I believe it is going to get cooler again soon so for those of you struggling with the heat I hope there will be some relief soon. Just 2 notices;

Meeting
Tomorrow is our monthly meeting. Just a reminder that our meetings run from 13.30 till 15.30pm and for THIS MONTH ONLY we will be using the classroom at Galaxsea Divers, which is at 22 Hines Road, Ipswich, IP3 9BG, which has parking available. In light of being at a different premises this months meeting will be more of a social with nibbles and a raffle and time to talk to each other. If possible can I ask you to bring something to share with the nibbles and a raffle prize but only if you can.  If you get lost or need anything I will be available on my mobile, I will call you back if I am driving.

CFS Unite BBQ
I would like to invite you and your family and friends to join me this Sunday the 12th August to the CFS Unite annual BBQ. It takes place at mine (I live in IP2) from 1pm till 5pm, stay for as long as you are able.  We will supply rolls, burgers and sausages  (including Veggie), and a couple of cheesecakes for dessert however we ask if you want more to eat please bring it along with your own drink and if feasible a chair (I have about 8 to use). I do ask that you let me know if you intend to join us and if you have any dietary requirements so we have enough burgers and sausages etc....I need to know final numbers by Saturday night so I can go shopping Sunday morning.

That is it for now. I hope to see you some time this week either tomorrow or Sunday or even better both.

Take care and as always thinking of you.
--
Kind regards, best wishes and gentle hugs

Gemma and The CFU Team
xxx

Information from our June meeting

posted 9 Jun 2018, 05:08 by Gemma Richards

On Tuesdays meeting there was quite a lot of information given out so I have listed it here for those who attended, this information will also be sent out in an email later on today.  G x

1) Gemma thanked everyone who came along to the Christmas meal. It was a great afternoon and we turned some heads wearing our Christmas hats. Look forward to the 2018 one in December. 





2) Events coming up:
        a) Coffee morning 10.30am till around noon at Gemma's house, contact Gemma for more details. 
        b) CFS Unite BBQ is on Sunday 12th August at Gemma's house from 1pm. We supply the burgers and                 rolls. 
        c) Trip to Aldeburgh coming up so we can give them the cheque from the monies raised from the April             quiz, please join us for an afternoon at the beach with fish and chips. Details to be confirmed. 
        d)Bryan is going to look into hiring a beach hut at Felixstowe for the day soon so hope you can come             along for the day by the sea. 

3) The Springfield Follies are holding their 70th Anniversary event (details in the picture below). A group of us are going on Saturday 9th June so please do join us. If you cant make the 9th please do go to another showing you will be entertained. Contact us if you would like more details. 


4) The data email was sent, thank you to those who replies. For those who did not reply you were sent an email to confirm you have been taken of out mailing list, however should you change your mind please contact us via email providing consent and we add you back onto our mailing list. 

Finally we were really lucky to have Caroline from the Disability Advice Services (DAS) attend our meeting and talk to us about filling in paperwork for PIP, Universal Credit, appeals, tribunals and also what to do and what not to do when claiming benefits as well as what support people might be able to receive. For more information, the details for DAS will be posted on our helpful links page shortly. Please always seek support for claiming benefits as they can help you claim but will also support you should your claim go to appeal or tribunal. Also Caroline shared with us a document from Action For ME titled 'Personal Independence Payment: filling in the form' which you will find attached to this blog and on our information page.   Caroline also suggested filling in an activity log to provide with your claim, she will be sending this to me shortly and once I receive it I will share with you. 

The only other thing not mentioned at group is that I am going to a Car boot sale on the 8th July to get rid of some stuff, all monies will go towards group, if you have any items you are willing to donate please let me know so we can arrange collection/delivery. 

Speak soon and remember always here if you need us. 

Gemma x

Not receiving our emails but want to?

posted 9 Jun 2018, 04:46 by Gemma Richards

If you wish to receive our emails then please email info@cfsunite.co.uk and request to be added to our email list.

Our emails usually inform you of what we have upcoming or what we have been up to however we also like to keep you in the loop about Chronic Fatigue related stuff so on occasion we will update you with what we think is important.  

If you don't wish to receive our emails then just check back on our blog for up to date information or join our Facebook and Twitter pages, details of which can be found on our contact us page.  

Kind regards

Gemma. 

GDPR Data - Email sent

posted 19 May 2018, 09:37 by Gemma Richards

We have sent out an email today regarding consent. If you currently receive emails from us, please respond so that we can still email you. 

The emails sent can be found below. Should you have any questions please let me know. If you wish to be added to our email list please get in touch. 

Email sent today: 

To make sure you continue to receive our emails, please reply to this email, otherwise, we won't be able to contact you after the 25th of May 2018!

As a valued member of Chronic Fatiguers Unite, we currently send you newsletters and emails about all the events and information we have upcoming or we have been given.

From 25th May 2018, the new EU General Data Protection Regulation (GDPR) will be coming into effect. In order to remain compliant with the law, Chronic Fatiguers Unite needs to have new consent to be able to continue to send emails to our members.

This email is to gain your consent for Chronic Fatiguers Unite to have your email address, to send you information regarding upcoming events and new information related to Chronic Fatiguers Unite. 


If you wish to give your consent please reply to this email with the following information before the end of the 25th:

Your name - 
I consent for Chronic Fatiguers Unite (CFS Unite) to send me emails in relation to upcoming events and information. 


Once we receive your consent, from the 25th of May 2018 you will continue to receive our emails. You can update your preferences at any time by emailing us to let us know of any changes or if you wish to unsubscribe. 

Finally, I will be adding a page on our website about how we handle and protect your information. I will send this out in a separate email in the next few days. 

Kind regards

Gemma


Christmas in May

posted 8 May 2018, 04:34 by Gemma Richards   [ updated 8 May 2018, 04:34 ]

Hi all, 

I hope you had a lovely Bank Holiday weekend and that the sun and warm weather helps. 

On Tuesday the 15th May, we are holding our belated Christmas meal which we would love for you to join us. The meal will be at The Mermaid in Ipswich, arrive at 12.30. We ask you to wear or bring a Christmas outfit/jumper/t-shirt to celebrate. We will also be running a secret Santa. For the secret Santa, we ask it to be both a male/female friendly wrapped present and spend no more than £5. Also seeing as it is ME Awareness month we would like it to be a Blue themed present if possible, please.

If you intend to come please let me either by email, message or on Facebook. Please let me know no later than 6pm on Friday 11h May so I can reserve your place and ensure you get a cracker. Looking forward to it. Hope to see you all.

Gemma x

Taking a break!

posted 21 Apr 2018, 06:55 by Gemma Richards

Hi all, 

I am just sending a little email to inform you that I am taking just over a week off from
today until the end of next Sunday 29th April. 

For those of you who don't know, I had my beloved dog and best friend Bailey put to sleep yesterday which has left me heartbroken and I feel I need a bit of a break to grieve. I will probably still be floating around on Facebook but there will be no updates to the website or emails sent out until after this date unless I feel I am able that includes posting on facebook and twitter. I will also be limiting my phone calls and texts for this time. I hope you can all understand this difficult decision but at this time I am going to struggle to support others when I need to support myself and my family. Please use facebook for a sounding board if you need to talk to others and please be reassured I will be back and ready on Monday 30th April. 

On my return, I will update you all on the excellent news regarding our quiz held on April the 7th and share all the awesome pictures take from what was a lovely afternoon. 

Of course, I will see you all on Tuesday 1st May in our monthly meeting at the hall. We have a visitor coming in to talk to us about the benefits of Aloe Vera. Our meetings run 13.30 until 15.30. 

Also on Tuesday 15th May at 12.30 we are having our belated Christmas meal, it is currently looking like we will go to the Mermaid for a carvery and I am hoping to get you in (or to just bring depending on the weather) your Christmas Jumpers and a secret Santa (max value of £5). Please do let me know if you can join us, I will send out more details after my break but in the meantime may I ask you kindly SAVE THE DATE for our May Christmas meal. 

All the best and thank you for understanding.

Gemma X

Cake and raffle plea for the quiz!

posted 27 Mar 2018, 09:08 by Gemma Richards

Hi all, 

I have sent out an email out today regarding our April meeting, Jo Feakes information from last month and also our upcoming quiz on the 7th April. Let me know if you didn't receive the email but want to.

Regarding the quiz, I have sent out a plea...We are hosting a raffle and cake sale and I am asking/begging if anyone would be willing to donate some cakes for us to sell and/or an item for the raffle. If you are able to please let me know by the end of the 3rd April and let me know if you can deliver to the church on the day at 13.00 - 13.30 or if we need to arrange collection on the Saturday morning.

G x

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