Blog

Welcome to our blog page. This is where you will find our recent news and our future plans. If you have anything to share then please email it so we can post your news too!

Zoom and video

posted 22 Jan 2021, 05:22 by Gemma Richards

Hi all, 

A few things coming up:

1. Tuesday 26th January is our next Zoom meeting from 14.00. I will send out the link Monday. I have a few things to share with you, but do not worry if you cannot attend I will share them again after. 

2. Last year I asked members to share photos of their crafts and hobbies for me to make video. It somehow got waylaid and then today I finally got around to making it click here to see our recent video. I hope you like it. 

3. Finally, our newsletter is ready and will be printed over the weekend to be sent out, it will then be emailed out  at the end of the month. If you think you would like a printed copy and are not sure if I will send you one, please let me know. 

1st Val's Flowers of hope sent this year

posted 4 Jan 2021, 08:33 by Gemma Richards

Tomorrow our first recipient for 2021 of Vals' Flowers of Hope will be received. The bunch ordered is pictured right. 

Vals Flowers of hope was launched in 2016 when sadly one of our lovely members Val passed away. Since then we aim to send out flowers ever quarter in her memory to a member who needs a bit of support, a reminder they are loved or a pick me up. 

For anyone interested our flowers are purchased from Simply Flowers, Ipswich. 

Happy New Year and plans

posted 4 Jan 2021, 02:20 by Gemma Richards   [ updated 4 Jan 2021, 03:09 ]

Happy New Year!
I hope despite all circumstances your Christmases and new Years went as well as can be expected and I pray that 2021 will be a more positive year for us all. 

Unfortunately, COVID is still at the forefront of our minds, the news and our lives and as of yet the idea of meeting together in person seems like a far away dream, hopefully this year it will happen and I cannot tell you how much I miss hugs!

For the first few months of this year I have scheduled Zoom meetings fortnightly beginning Tuesday 12th January at 2pm. For all the dates visit our upcoming events page 
www.cfsunite.co.uk/meetings/upcoming-events. On our Tuesday 9th February meeting we will celebrate 10 years!

Secondly, I need your help. I have been having a think over the holidays about ways we can reach out more and share our support during this time and I wish to relaunch our Newsletter. As a result, I could do with people writing for it and it could be anything; ideas I have had so far:
Sharing recipes
Sharing our crafts either by  sharing craft patterns and sharing photos of us doing the crafts we love or sharing our crafts such as photos, our poems. 
Recommending good books, audiobooks, films, documentaries to each other. 
Doing a shout out to someone who has helped you recently, or just to send them a message of hope. 
Sharing wonderful moments that have happened
Providing tips for surviving COVID/CFS or Anxiety

The list is endless. Please email me your ideas or contributions by Sunday 24th January so I can put it together and send it put beginning of Feb. 

Finally, if you know of anyone who is having a rough time, please let me know so I can send them a thinking of you card, a text and soon to return our our quarterly Val's flowers of hope. 

If you have other ideas please let me know. 

Here is to hopefully a better year and hopefully time to reunite again soon. 

Love and hugs albeit virtually. 

Gemma

Upcoming Zoom and Useful stuff

posted 21 Nov 2020, 04:09 by Gemma Richards

Hello and happy November. 

I was made aware yesterday there was only 4 Fridays until Christmas, what a weird year this will be. I am looking forward to actually staying at home this year. Usually I burn myself out as I feel the guilt of having to go and see our family members, between us we have a lot of them and usually rack up the miles and the exhaustion. So this year I am making sure I will look forward to more time at home and hope fully reserving the energy reserves. 

I thought I would share with you what is upcoming and also some useful information. 

Upcoming

We are still hosting regular Zoom meetings and have a few lined up from 14.00 till 15.30 pm. 
I will email out the link the day before the meetings. 

Dates are : 

Tuesday 10th November  - Zoom meeting
Tuesday 8th December  - Zoom meeting

Christmas Meal

Finally,  it has been a difficult decision but also as we have had to cancel our Christmas meal this year. HOWEVER I would like to arrange a Zoom one!
On Tuesday 22nd December I invite you to join us  for our  Zoom online Christmas meal meeting
12.30 - 14:30. 
Put on your Christmas jumper and hat, bring a plate of food and lets eat a mini meal together. I will also provide a mini Christmas quiz and maybe even organise some carols if we fancy it. 

Hopefully we will meet again in January. For all our events please visit our Upcoming Events page. 

Information to share
Please find useful information which the ME Association has shared with us to help you during these testing times of COVID-19. 

The following information is available in the files attached below and more information is on our Information page. 

COVID-19 Employment Support information
COVID-19 - Reducing Risk and Infection
COVID-19 - Post Viral Fatigue and Post Viral Fatigue Syndrome following Corona. 

In the meantime, thank you all for you ongoing support to the group, to each other and to me. I have valued you more and more over this time and miss you so much. I cannot wait to meet in person again soon. 

Take care

Gemma X

Zoom, social distance meet and more!

posted 20 Aug 2020, 02:26 by Gemma Richards   [ updated 20 Aug 2020, 02:26 ]

Good morning.

I hope you are all keeping as well as possible. Alot of us struggled last week with the intense heat so hope you are feeling better now it has cooled. I need a really good storm to clear the air as I am still feeling very foggy and achey, which I know some of you will agree with me as well.  This is probably a bit of a long email so you may need to make a cuppa of your favourite drink, get your diary out and take you time. Below is some of our upcoming events and ideas. Please read and feel free to ask any questions. 


1. Zoom meetings
  - these are fortnightly with our previous one being last Tuesday 18th August. Unfortunately, I cannot do the next one scheduled in  2 weeks as I have a PD day at work (after 5 months). After discussion our next Zoom meeting will now take place 3 weeks from now and will be on Tuesday 8th September at 2pm. I will send the link to join the meeting closer to the date. The next one should follow on the 22nd September. However, the following one may need to be rescheduled as it falls on the 6th October which is my daughter Rebeccas 3rd Birthday so I will be unavailable. I will discuss this with fellow zoomers at our next 2 meetings and will notify you of the October zoom meetings dates once decided. 
In summary our next 2 Zoom meetings are Tuesday 8th September and Tuesday 22nd September at 2pm. 

Struggling to access zoom but wish to join - read the next paragraph. 
If you are struggling to access zoom but wish to join us, please make contact and we can arrange a phone call to see if I can help access it, we can then practice and see how we get on. There is a common misconception you need to register and log in, however you can access it from your internet browser. The quality is not as good but you can still join the meetings. Please let me know. 

2. Social distance meet in the park 
At the moment our meetings at the hall cannot take place in line with current guidelines but a few of you have mentioned meeting at a park, to socially distance, bringing your own food and drink. I would like to do this. I am thinking of accessible parks for parking and accessibility and am thinking of using Chantry Park or Bourne Park. Looking at the weather and availability I can do Wednesday 26th August at 1pm. If anyone can recommend a better place and I can confirm location nearer the time. But please save the dates. 
In summary Social distance park meetings at 1pm on Wednesday 26th August  (Location to be confirmed). 

3. Blog post by members each month.  
Recently, I have been reading posts on different websites where their members have blogged to share their journey of life, becoming ill and how they have been treated since becoming ill. I find these really interesting and have shared some on the Facebook and Twitter groups. I would like to do this for our group where our members and their families can share their experience with each other so each month i would like to receive a post from a member to share (you can remain anonymous if you prefer) and help raise awareness as well. I think this will help others realise that we are all going through our own journey and have struggles and also help everyone get to know each other. I hope this makes sense I am struggling to word it properly. I wish to post this on the 1st of each month. I will be writing the first one but if you are happy to write a blog for me to share please let me know and I will let you know your month. 

4. Videos of us doing things we love
Quite a while ago I asked you to end in pictures of you doing the things you love to make a video like our wildlife one, I have not quite finished this so this is my last push, if any of you can send in a picture for me to share of you doing what you love, a craft etc.... please send it to me via email by the end of this week, I aim to put it together Sunday night or Monday. 

Phew,  I think that is it for now. Take care and please remember if you need a chat give me a call 07791383143. 

Gemma x

Zoom meetings

posted 29 Jun 2020, 23:58 by Gemma Richards

Hi all, 

I am trying to be more organised so thought I would email the next 3 zoom dates, I will send out the link for the meeting of course the day before the meeting. The upcoming dates for the next 3 zoom meetings are below. They will start at 2pm and usually last about 90 minutes but of course if you want to pop in for a shorter time you are more than welcome. Of course, these are not as good as our in person meetings but they are the next best thing. 

Dates: 
Tuesday 7th July
Tuesday 21st July 
Tuesday 4th August

Always here if you need a chat. 

G X 

Our video and next challenge

posted 27 Jun 2020, 06:04 by Gemma Richards

A little while ago I set the challenge of sending in positive photos for us to make a video and i have finally made the video the link of which is attached below in our files or the link is https://animoto.com/play/zNrPzxAKFRTe7QvTJd0Jsw. This is my first attempt so be gentle but I hope you like it and it gives you some joy, I had a lot of fun making it and seeing all your photos. 

Our next challenge has been set:
Please send in a photo or some photos of you doing something you love doing, such as crafts or reading, walking etc...if you do not wish to be in the photo that is fine but would love to see your faces or you hard at work. Can I have all photos by next Saturday 4th July please .Love and hugs Gemma x

Still here!

posted 18 Jun 2020, 12:38 by Gemma Richards

I cannot believe we are in Mid June and still not able to arrange a meeting to see our lovely group. I miss you all and the support, friendship and love, you have shown me over the years. 

Alas, we are still here though even if we cannot meet in person. We are hosting fortnightly Zoom meetings on a Tuesday afternoon from 2pm, which has been a great success and we have had some laughs. Our Facebook group is active and we can still provide support over the phone. 

Until we meet again, always here and wishing you well. 

Gemma x

Covid 19 Information from ME Association

posted 3 Apr 2020, 13:01 by Gemma Richards

Hi all, 

A few people have been emailing me questioning if they should have a letter to shelter for 12 weeks. According to Me association anyone with a CFS condition is deemed in the vulnerable group so should shelter for 12 weeks. Link is here. https://www.meassociation.org.uk/…/me-association-full-gui…/.

As per normal, even the government are confused by CFS conditions and whether we are vulnerable or not.

Letters from GP are actually issued by government and as yet we have not received one even for Rebecca's asthma. I was informed if i need a letter for my employer to contact GP but if not just follow the shelter guidelines for 12 weeks then review. Hope this helps.


Please take care and see you soon I hope. 

G x

Covid 19 - Meetings cancelled

posted 23 Mar 2020, 07:15 by Gemma Richards

Hi all, 

In this strange times I am really hoping you are all looking after yourself. 

In light of the horrible Covid 19 and the government requirements of social distancing and the closure of gatherings at the church, I am having to make the hard decision to cancel our meetings and any social events for the foreseeable future. 

As an alternative, if you want a telephone call around the time of our monthly meeting, please let me know and I will schedule a call to you. Whilst I hope this is a temporary measure I will keep you posted. 

I am so sorry as I know so many including myself really benefit from these meetings but your safety comes first. 

Take care and keep safe.. 

Lots of love and virtual hugs
Gemma x 

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