Our aim is to provide support, comfort and friendship to those online and also to people locally (in the Suffolk area). With our discussion board, blog and email chums, we hope people online can keep in touch and also have any questions answered. Locally, we have monthly meet ups, socials, house visits and pen chums to name a few to help people with Chronic Fatigue feel less isolated and also have some support. For more information please click on either our Online Events or Local Events.

Whilst we wish to support people with Chronic Fatigue overcome isolation and offer support, advice and an ear, we are also a support group designated to help charities research Chronic Fatigue and hopefully eventually find a cure. The organizations we support and fundraise for, and what they do are listed below.

Organizations ;

Whilst currently these are predominantly ME related charities, we hope as our member base increase we will have a more varied charity base to raise funds for.

Those we currently support:
Action for ME (AFME)

“Dedicated to improving the lives of people with ME”

Action for ME is a charity that campaigns for more research, better care and treatment of those with ME. They provide support and information for those affected and their families/carers. With their membership and telephone support line they provide people with support and information to help manage their day to day lives, and also keep us updated with research. For more information their website is www.afme.org.uk.   

Association for Young People with ME (AYME); 

“Run by young people with ME/CFS for young people with ME/CFS”

AYME is a young persons charity, set up to support those under 25 with ME, older then 25 no worries there is the AYME Graduates designed for those older ones. AYME is committed to supporting children and young people with ME and their families. They are dedicated to providing support, help and understanding of ME, and with an extensive resource information pack available to members, plus some excellent informative books. An excellent bonus support of AYME is they provide the chance to make new friends in a similar situation through their message board, pen friends and buddy scheme. For more information please see www.ayme.org.uk.

Older then 25, then visit the website and look up AYME Graduates.  
Fibromyalgia Association (FMA);
     

"Established in order to provide information and support to sufferers and thier families. Also to provide medical information for professionals and operate a national helpline"

FMA UK is a registered charity administered by unpaid volunteers, a majority who are also fibromyalgia sufferers who work extremely hard, despite their condition, to raise awareness of Fibromyalgia, to bring greater awareness and education of Fibromyalgia and related problems associated with the condition. They also aim to encourage NHS and other funding for new research projects. At present there is very little research being carried out in the UK and sufferers are told there is no cure. There is hope that this will be a statement of the past.
 
ME Association;
“Informing and supporting those affect by ME/CFS”
 
The ME Association is a charity that aims to provide information, support and practical advice for people affected with ME/CFS, their families and carers.  They also are involved in funding physical research into ME/CFS and provide education and training. With their everyday ME Connect Helpline and leaflets and booklets to help cover all aspects of ME and management they provide information, reassurance and tools to helps those affected either by having ME or carers cope.  For more information visit their website www.meassociation.org.uk.
 
Multiple Sclerosis Society;
“Committed to bringing high standards of quality health and social care to those affected by MS”

The MS Society is the UK’s largest charity dedicated to those with MS. Committed to bringing high standards of care, providing encouragement and support to those affected, and also to support medical and applied research into MS, its causes and control. With a network of branches spread over the UK, their aim is to support people with MS, and to encourage those with MS gain their full potential in life by managing their conditions. Their website is www.mssociety.org.uk.

 

If you wish to let us know of a charity you would like to us to fundraise for or if you have some fundraising ideas please contact us.